I had my rounds dropping EC's when I stumbled upon Posh Totty's blog. I was touched by her profile and even of her post on CHD Awareness (Congenital Heart Disease). This was in her post...
This story made me remember about the story of my neice . She survived only for a year. Let us all sign up for awareness. I know for a mom experiencing this with their child and family looks at everyday they wake-up alive is a blessing worth thanking God for c:
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CHD (Congenital Heart Defects) is the number one killer in babies and children, it is more fatal than cancer. As there is still no national awareness in the UK, the majority of people do not seem to know an awful lot about chd, many people are totaly un aware that children and the young can have problems with their hearts, its still mainly associated with something only the elderly suffer from.
CHD is an anomaly of the heart that is present at birth. CHD’s cause one or more portions of the heart to develop abnormally.
There is no known cause for CHD.
CHD is the number 1 birth defect and is the leading cause of birth-defect related death. BUT it is the least publisised of all the known birth defects.
CHD strikes without regard to economic level, ethnic origin, sex, geographic location or religious beliefs. Aprox.16,000 infants are born with CHD each year in the U.K yet newborns are still not screened for CHD’s.
Some babies may be diagnosed before birth or at birth, some not until days, weeks, months or even years later. Sadly, too many are not diagnosed until after death.
There are 1.2 million children and adults with CHD alive today. CHD affects not only patients, but also their entire families too.
Please help us to raise awareness by signing the petition HERE
This story made me remember about the story of my neice . She survived only for a year. Let us all sign up for awareness. I know for a mom experiencing this with their child and family looks at everyday they wake-up alive is a blessing worth thanking God for c:
my cousin Lem at Arla's resting place